Updated: Sep 26, 2020
Many community members are aware of what went down this week with HemoAware Founder, Jesse John Francis Clark.
Clark went on Instagram and Facebook to tell the community that he was essentially kicked out of his local HTC, Hemostasis and Thrombosis Center of Nevada. (HTCNV)
On Tuesday September 22, 2020, Clark went in for his weekly appointment at HTCNV. His treating Family Nurse Practitioner (FNP) Amber Federizo gave Clark two options: sign a contract with a non-disparagement clause or be discharged from the HTC. The contract was HTCNV’s way to silence Clark. "I am currently HTC, homeless. I do not have a provider for my hemophilia. I don't have any factor on hand and I don't know what I'm going to do. If I die, I die." said Clark on the HemoAware Podcast. This all stems from a personal vendetta that Amber Federizo has against Clark.
On Tuesday evening, Clark went on the HemoAware Podcast to tell the community what went down. On the podcast, Clark says "Who makes a patient sign a contract like that? That's just is crazy and, obviously, it bothers them that I am a voice in the community to go to great lengths of trying to silence me."
Clark says that he tried for years to get his local HTC to partner up with HemoAware to organize fundrasing events for the local bleeding disorders community, since HTCNV does it with the local Nevada Chapter of the National Hemophilia Foundation. The Hemostasis and Thrombosis Center of Nevada (HTCNV) had always denied HemoAware due to thier strong allegence to NHF.
As many of you know, Clark resigned as the Secretary of the board for the Nevada Chapter of the National Hemophilia Foundation when he became aware of NHF's wrongdoings. Clark started HemoAware in 2018 to improve the lives of thise with inherited bleeding disorders through advocacy, education and technology.
Upon further investigation into the Hemostasis and Thrombosis Center of Nevada (HTCNV), it is a domestic non-profit organization that was formed on September 14, 2017. This Hemophilia Treatment Center came to be after Cures 4 The Kids Foundation lost is federal funding after being audited for misapproproating funds. Amber Federizo left the Cures 4 The Kids Foundation to try and get a second chance and under HTCNV.
According to the Nevada Secretary of State, there are currently five board members for HTCNV. (Addresses are public record so they are listed below)
Jerry Fox, President: 9935 Masterful Drive, Las Vegas, NV, 89148
Julie C Usgaard, Director: 778 Star Apple Lane, Las Vegas, NV, 89178
Stuart Richey, Director: 9695 Phoenician Are, Las Vegas, NV, 89148
Kelli Walters-Perlongo, Director: (former Nevada NHF Executive Director) 2717 Shady Pond Way, Las Vegas, NV, 89117
Also, according to the Nevada Secretary of State, Amber Federizo has a Profesional LLC (PLLC) that was formed on July 24, 2017.
Amber Federizo, Manager: 10250 HAWKS WING ST, LAS VEGAS, NV, 89178
Amber Federizo currently has a 2.8 rating from past/present patients via WebMD.
Upon further investigation, the Hemostasis and Thrombosis Center of Nevada donated $160,220.00 to the Nevada Chapter of the National Hemophilia Foundation in 2019. HTCNV was the largest contributing donor to the Nevada Chapter of the National Hemophilia Foundation. Why such a large amount you ask? This is the typical quid pro quo. The HTC donates to the local chapter and the local chaper refers patients to the HTC. The HTC then bills the patient's insurance and will esentially recoup it's donation several times over.
Clark has been Amber Federizo's patient for over 6 years now. He said on the HemoAware Podcast that he tried to get HTCNV to put on local fundrasing events for the bleeding disorders community and they have said no. Clark also requestd a small donation to help the community and HTCNV said no. Clark says that "I also asked the HTC if they wanted me to create a better website for the center because the one that they have now is very juvenile-looking and they are the only federally recognized HTC here in Nevada and their website, it looks like a seven-year-old created it. I mean, it is bad and I offered to make a website because that's my background... and they said, "No. We don't have the budget to pay you to do our website."
Clark then said he would create thier website for free and still got denied.
Clark said he is a patient who just wanted to get involved with his community. Amber did give Clark access to the The Hemostasis and Thrombosis Center's facebook account to handle all social media but was locked out of the account after Clark tried to warn patients about the Hemlibra deaths.
Clark said on the HemoAware Podcast that "This is when the first five deaths occurred in regards to HEMLIBRA. I went on the Facebook page, the HTC, and posted about the first five deaths on HEMLIBRA. I thought it was important to let the community know, so I pretty much forwarded a story in regards to the first five deaths. And immediately, when I posted it, the family practitioner there (Amber Federizo) locked me out of the Facebook page and deleted the post. It was suppression and it wasn't right." This was all the fuel Clark needed to start HemoAware.
A community member on Instagram asked Clark why the Amber removed the post about the Hemlibra deaths and Clark stated that "They took down the post because they were trying to get patients on Hemlibra and I posted that there were 5 deaths. My post was going to screw up their agenda so they removed it"
In spite of the negative actions from the Hemostasis and Thrombosis Center of Nevada, Clark noticed that their website only had a .org extention. So, Clark went and purchased the .com extention of HTCNV. Clark said he then had all traffic forwarded to HemoAware's website. Clark says "basically, it was a F*** You but also I wanted the community to know that we existed, so it was like advertising. Apparently, my HTC just found out that I purchased their dot-com extension and now thier pissed."
Buying domain names with different extentions is legal and there is no recourse HTC could do so they kicked Clark out as a patient. After the fallout with HTCNV, Clark went ahead and extended the domain ownership for another 3 years until March 2024 and posted it on Instagram.
Since the fallout with HTCNV, Clark has filed a complaint with the Nevada State Board of Medical Examiners . Clark has contacted several media outllets, ACLU and has consulted with legal counsel to bring suit agsint Amber Federizo, Daisy Cortes, HTCNV and its Board Members for damages.
Clark says that this is an agenda that is coming full circle. He says he has been trying to warn the community about the National Hemophilia Foundation and its wrongdoings. Clark has been the only community member to question the safety of emicizumab (Hemlibra) which currently has 44 fatalities. Clark wrote an extensive article for Hemo Times and questioned Dr. Robert F. Sidonio's eagerness to prescribe the drug to young hemophilia patients without questioning the drug's safety. Hemo Times has checked out HTCNV's Instagram account and, upon looking into the account's followers, guess who follows Amber Federizo's HTCNV? - Dr. Robert F. Sidonio.
Coincidence or conspiracy?